Patient Organizations

American Academy of Dermatology website designed for children
“Kids Skin Health"

National Organization for Albinism and Hypopigmentation

Alopecia Areata
NAAF - National Alopecia Areata Foundation

A camp for young people with chronic skin conditions
Camp Discovery

Basal Cell Carcinoma Nevus Syndrome (also called Gorlin Syndrome)
Basal Cell Carcinoma Nevus Syndrome Life Support Network

Congenital Nevi
Nevus Outreach
Nevus Network

Cutaneous T-Cell Lymphoma - Mycosis Fungoides
Cutaneous T-Cell Lymphoma Information Page

Ectodermal Dysplasia
National Foundation for Ectodermal Dysplasia

Ehlers-Danlos National Foundation

Epidermolysis Bullosa
DebRA - Dystrophic Epidermolysis Bullosa Research Association of America

Eczema/Atopic Dermatitis
NEA - National Eczema Association

HIG - Hemangioma Education
NOVA - National Organization of Vascular Anomalies
Vascular Birthmark Foundation

FIRST - Foundation for Icthyosis and Related Skin Types, Inc.

Incontinentia Pigmenti
Incontinentia Pigmenti International Foundation

Klippel-Trenaunay Syndrome
K-T Support Group
Sturge-Weber Foundation

Lupus Erythematosus
Lupus Foundation of America

Mastocytosis Society
Pediatric Mastocytosis Organization, also known as Mastokids

National Neurofibromatosis Foundation

Parry-Romberg Syndrome
Parry-Romberg Syndrome Resource

Pediculosis/Head Lice
National Pediculosis Association

National Pemphigus Foundation

Pityriasis Rubra Piliaris (PRP)
PRP support group

American Porphyria Foundation

Port Wine Stains
Sturge-Weber Foundation

Pseudoxanthoma Elasticum (PXE)
PXE International, Inc.

NPF - National Psoriasis Foundation
Fundacion Psoriasis de Panama (for spanish-speaking patients)

Scleroderma Foundation

Skin Cancer
Melanoma Patients' Information Page
National Council on Skin Cancer Prevention

Sturge-Weber Syndrome
Sturge-Weber Foundation
National Organization of Vascular Anomalies (NOVA)
Vascular Birthmark Foundation

Tuberous Sclerosis
National Tuberous Sclerosis Association

National Vitiligo Foundation
Vitiligo Support International

Xeroderma Pigmentosum
Xeroderma Pigmentosum Society
Xeroderma Pigmentosum Family Support Group