Patient Organizations

American Academy of Dermatology website designed for children
“Kids Skin Health"

Albinism
National Organization for Albinism and Hypopigmentation

Alopecia Areata
NAAF - National Alopecia Areata Foundation

A camp for young people with chronic skin conditions
Camp Discovery

Basal Cell Carcinoma Nevus Syndrome (also called Gorlin Syndrome)
Basal Cell Carcinoma Nevus Syndrome Life Support Network

Congenital Nevi
Nevus Outreach
Nevus Network

Cutaneous T-Cell Lymphoma - Mycosis Fungoides
Cutaneous T-Cell Lymphoma Information Page

Ectodermal Dysplasia
National Foundation for Ectodermal Dysplasia

Ehlers-Danlos
Ehlers-Danlos National Foundation

Epidermolysis Bullosa
DebRA - Dystrophic Epidermolysis Bullosa Research Association of America

Eczema/Atopic Dermatitis
NEA - National Eczema Association

Hemangioma
HIG - Hemangioma Education
NOVA - National Organization of Vascular Anomalies
Vascular Birthmark Foundation

Ichthyosis
FIRST - Foundation for Icthyosis and Related Skin Types, Inc.

Incontinentia Pigmenti
Incontinentia Pigmenti International Foundation

Klippel-Trenaunay Syndrome
K-T Support Group
Sturge-Weber Foundation

Lupus Erythematosus
Lupus Foundation of America

Mastocytosis
Mastocytosis Society
Pediatric Mastocytosis Organization, also known as Mastokids

Neurofibromatosis
National Neurofibromatosis Foundation

Parry-Romberg Syndrome
Parry-Romberg Syndrome Resource

Pediculosis/Head Lice
National Pediculosis Association

Pemphigus
National Pemphigus Foundation

Pityriasis Rubra Piliaris (PRP)
PRP support group

Porphyria
American Porphyria Foundation

Port Wine Stains
Sturge-Weber Foundation

Pseudoxanthoma Elasticum (PXE)
PXE International, Inc.

Psoriasis
NPF - National Psoriasis Foundation
Fundacion Psoriasis de Panama (for spanish-speaking patients)

Scleroderma
Scleroderma Foundation

Skin Cancer
Melanoma Patients' Information Page
National Council on Skin Cancer Prevention

Sturge-Weber Syndrome
Sturge-Weber Foundation
National Organization of Vascular Anomalies (NOVA)
Vascular Birthmark Foundation

Tuberous Sclerosis
National Tuberous Sclerosis Association

Vitiligo
National Vitiligo Foundation
Vitiligo Support International

Xeroderma Pigmentosum
Xeroderma Pigmentosum Society
Xeroderma Pigmentosum Family Support Group