Patient Organizations

National Organization for Albinism and Hypopigmentation

Alopecia Areata
NAAF - National Alopecia Areata Foundation

Basal Cell Carcinoma Nevus Syndrome (also called Gorlin Syndrome)
Basal Cell Carcinoma Nevus Syndrome Life Support Network

Congenital Nevi
Nevus Outreach
Nevus Network

Cutaneous T-Cell Lymphoma - Mycosis Fungoides
Cutaneous T-Cell Lymphoma Information Page

Cutis Marmorata Telangiectatica Congenita (CMTC)
CMTC Alliance

Ectodermal Dysplasia
National Foundation for Ectodermal Dysplasia

Ehlers-Danlos Society

Epidermolysis Bullosa
DebRA - Dystrophic Epidermolysis Bullosa Research Association of America

Eczema/Atopic Dermatitis
NEA - National Eczema Association

HIG - Hemangioma Education
Vascular Birthmark Foundation
International Society for the Study of Vascular Anomalies

FIRST - Foundation for Icthyosis and Related Skin Types, Inc.

Incontinentia Pigmenti
Incontinentia Pigmenti International Foundation

Klippel-Trenaunay Syndrome
K-T Support Group

Lupus Erythematosus
Lupus Foundation of America

Mastocytosis Society
Pediatric Mastocytosis Organization, also known as Mastokids

Neurofibromatosis Network

Pachyonychia Congenita
PC Project

Pediculosis/Head Lice
National Pediculosis Association

National Pemphigus Foundation

American Porphyria Foundation

Port Wine Stains
Sturge-Weber Foundation

Pseudoxanthoma Elasticum (PXE)
PXE International, Inc.

NPF - National Psoriasis Foundation
Fundacion Psoriasis de Panama (for spanish-speaking patients)

Scleroderma Foundation

Skin Cancer
National Council on Skin Cancer Prevention

Skin Conditions and Birthmarks
Coalition of Skin Diseases
Made a Masterpiece

Sturge-Weber Syndrome
Sturge-Weber Foundation
Vascular Birthmark Foundation

Tuberous Sclerosis
National Tuberous Sclerosis Association

National Vitiligo Foundation
Vitiligo Support International

Xeroderma Pigmentosum
Xeroderma Pigmentosum Society
Xeroderma Pigmentosum Family Support Group